Georgia Advocacy- Day at the Capitol 2018


Start Date: January 23, 2018
Time: 9:00 AM- 2:30 PM

We need your voice!

Join the Crohn's & Colitis Foundation and RX in Reach Coalition for a day at the GA State Capitol.  Raise your voice as a patient or caregiver affected by Crohn's disease or ulcerative colitis.  Providers can speak up for their patient's rights.  These diseases affect 42,000 people in the state of GA.  Tell your legislator how Crohn's or colitis has affected you and what they can do to support your health and your future.  Our goal is to bring 50 patients, caregivers and providers with us on January 23 so law-makers will hear our stories!

GA Advocacy-Day at the Capitol
Tuesday, January 23, 2018
18 Capitol Square SW-Atlanta-GA-30334
9:00-10:30 AM- Volunteer training
10:30-2:30 PM- Visits to representative offices and lunch reception

What legislation are we trying to pass?

House Bill 519: Address Step Therapy Protocols by Implementing Patient Protections

The Crohn’s & Colitis Foundation supports legislation that would implement patient protections in insurer step therapy protocols. Step therapy is a practice by which insurers require patients to fail on a preferred medication before covering the physician-prescribed medication. Step therapy can and has resulted in worsened health outcomes for IBD patients. Treatment decisions must be kept between the patient and the physician. Patients and physicians must have a clear and timely means to attain coverage for the optimal treatment.

Legislation addressing step therapy include the following components:

  • Clinical review criteria used to establish a step therapy protocol shall be based on clinical practice guidelines

  • A step therapy exception request shall be granted in certain circumstances, for example if the drug is contraindicated or will cause an adverse reaction or physical or mental harm

 

 

 

 

 

In a recent survey of GA constituents, the Foundation found the following:

  • 34% of respondents have been subject to step therapy

  • It took most up to 6 months to fail first on the insurer preferred medications and it took some patients over one year

  • The reasons for failing on the insurer preferred are varied, including problems with comorbidities, hospitalization, adverse events, and that the insurer preferred medication was ineffective

  • 91% of respondents support legislation that ensures a medical provider can proscribe the most appropriate medication. 

Join the GA Chapter and the RX in Reach Coalition at the Georgia Capitol to share your voice about how Crohn's disease and ulcerative colitis affect your life.  We are working on legislation that will provide patients and physicians with the ability to utilize the right biologic medication needed to control these diseases. 

Please register in advance so we can reach out to you with more information about this event.  If you have any questions you can reach out to either:

Mary Esna-Ashari, Director of Education- mball@crohnscolitisfoundation.org or 404-982-0616
Christine Morris, Development Coordinator- cmorris@crohnscolitisfoundation.org or 404-982-0616

Itinerary

8:30 AM- 10:00 AM
Volunteer training and breakfast
Ramada Plaza Atlanta Capitol Park Hotel
Room # TBD
450 Capitol Avenue
Atlanta, GA
  30312

10:00 AM- 11:00 AM
On the ropes at the Capitol

11:00 AM- 2:00 PM
Lunch reception with RX in Reach Coalition members and legislators at the Coverdell Legislative Office Building (CLOB) - Room 605

*From the Ramanda we will walk 3 blocks to the Capitol and from there will walk across the street to the CLOB.  If the weather is bad we will Uber but please wear comfy shoes.

* Business attire required.


Location

Coverdell
18 Capitol Square Southwest
Atlanta, Georgia, 30334

For more information

404-982-0616
mball@crohnscolitisfoundation.org