News

Step Therapy/First Fail Legislation Officially a Law in NY!

On Dec. 31, Governor Andrew Cuomo signed legislation that would implement patient protections in step therapy protocols. The bill, #S3419c, would require health insurers in NY state to provide accessible and expedient means for patients and physicians to appeal step therapy protocols. It also lists instances when an exemption from step therapy should be granted; including when the insurer-preferred drug is contraindicated for the patient, the drug is expected to be inefficient, or the patient is already stable on a provider-prescribed drug. This bill is a win for patients and protects the shared decision-making between a patient and their physician. Congratulations and thanks to everyone that contacted their legislators and the Governor in support of #S3419c.


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2017 Monthly Volunteer Newsletter

January & February



Chapter Happenings

49th Annual Awards Dinner | December 14, 2016 | $852,0000

On December 14, $852,000 was raised at our 49th Annual Award Dinner supporting CCFA’s mission, support services and programs. Over 800 guests joined us to celebrate Honorees, AJ Vaynerchuk, Co-Founder of VaynerMedia & VaynerSports and Drs. Barry Jaffin and Anthony Weiss, Westside Gastroenterology.

A great evening filled with lots of inspiring moments and a wonderful dedication to our Honorees from friends and family completed the emotional night. Huge thanks to our Chair, Mitchell Modell, and Modell’s Sporting Goods for their unwavering support year after year. Special thanks to presenters, Robin Rosenthal Mehler, Alex Modell, Board Member and President of the Young Professionals' Committee, Rebecca Babcock, and comedian, Michael Fine. Finally thanks to all who came out to support our cause and on behalf of the 1.6 million Americans suffering with this diseases – we thank you!

Click here to see pictures.

Check out the honorees' tribute videos:

AJ Vaynerchuk

Drs. Jaffin and Weiss

To see videos of the program:

Part 1 | Part 2 | Part 3 | Part 4

spin4 | November 12, 2016 | $111,000

The New York spin4 crohn's & colitis cures raised over $111,000! The #partyonabike took place at SWERVE Midtown on November 12th where over 200 participants pedaled for cures. Nationally, the event took place in 26 cities with 1,100 riders on 422 bikes. In 2016, we raised more than $700,000 to find crohn's & colitis cures. spin4 crohn's & colitis cures is an indoor cycling relay where teams of up to four fundraised at least $1,000 then rode for two hours. 

Shout out to our top fundraising teams:

Team RB Cures $16,549

Ride for Rhodes $10,100

Team Brandes $8,791

spin4 Shelby $6,713

Panthers $6,580

To see pictures from the event, click here.

Take Steps Awards Party | November 1, 2016

At our inaugural Greater New York Chapter Take Steps Awards Party, we celebrated our 2016 walks, top fundraisers, and top sponsors! Congratulations to our 2016 Greater New York Chapter Take Steps Award winners!

  • #1 Friends & Family Team: Our Inspiration led by the Scarola Family (Brooklyn Take Steps) - $34,615
  • #1 Corporate Team: National IBD Assassins led by James Testaverde, Lauren King, and Sadhana Jacob (NYC Take Steps) - $40,709
  • #1 GI Team: The Feinstein IBD Center at Mount Sinai led by Dr. Ryan Ungaro, Sonia Pagan-Pastor, and Dr. James Marion (NYC Take Steps) - $14,710
  • Top Sponsor: Greenberg Traurig - $10,000
  • Top Media Sponsor: Fox 5 NY

*fundraising as of 10/12/16

Click here to see our photos from the evening. Click here to see the full program. Many thanks to all of our Take Steps participants – because of you, we raised over $535,000 through our three walks in just this year!

Broadway's Got Guts | October 24, 2016 | $191,000

The second annual Broadway's Got Guts event at the Copacabana was SOLD OUT! More than 225 guests enjoyed a spectacular evening of wonderful entertainment by Broadway’s brightest singing the wonderful standards and hits sung by the late, great Nancy LaMott who was herself diagnosed with Crohn's disease.

The Nancy LaMott "Got Guts" Award was presented to:

  • Joel M. Bauer, MD
  • Carmella Tully

The event’s co-chairs were Judy Bauer, Marilyn Chinitz and Piero Pozzi, Susan and James Dubin, Patricia and Edward Falkenberg, Wendy and Robert Federman, DDS, Susan and David Haas, Fern Hurst and Peter Rubin, MD, Susan and Michael Kerr, Kara and Daniel Kuelzow, Allison Rutledge-Parisi and James Marion, MD, Suzie and Jeffrey Stern, Peter Tully, Tina and Michael Yaraghi. Producers were Marc Eliot, David Friedman, Sarissa Michaud, Toby Ellen Sarna, and Peter Yawitz.

The evening’s host was Peter Yawitz with musical direction by Tedd Firth. Performances were by Holly Ann Butler, Capathia Jenkins, Alix Korey, Lesli Margherita, Matt Moisey, Brad Oscar, Analise Scarpaci, A.J. Shively, Tony Yazbeck, and Rachel York.

Thank you to our sponsors:

  • DIAMOND Carmella and Peter Tully
  • PLATINUM Susan and Michael Kerr
  • GOLD Anonymous | Judy and Howard Berkowitz | Victoria and Joseph Ferrara | Lostritto Family | Carol Phethean and Peter Yawitz
  • SILVER Broadway Cares | NYMI Associates | Patricia and Joseph Posillico
  • IN-KIND SWOOP

Last but not least, thank you to the event producers, Marc Eliot, David Friedman, Sarissa Michaud, Toby Ellen Sarna, and Peter Yawitz.

Click here for the journal.

Photos: Society Allure

Recap in Broadwayworld.com | Hamptons.com

Brooklyn Take Steps | October 9, 2016 | $93,000

Despite the rainy weather, our 5th Annual Brooklyn Take Steps walk was attended by 150 walkers and exceeded its goal, raising more than $93,000! Many thanks to those that were able to attend and a special thank you to:

  • Amanda Vallon, Pediatric Honored Hero
  • Cassandra Vallon, Pediatric Honored Hero
  • Baruch Shemtov, Master of Ceremony
  • Analise Scarpaci for kicking us off with the National Anthem

View photos here.

Staten Island Take Steps | June 4, 2016 | $57,000

Our Staten Island Take Steps walk was attended by more than 300 participants, brought together 26 teams, and raised over $57,000, raising $14K more than last year and surpassing our fundraising goal!

A special thank you to:

  • Liz Creazzo, Adult Honored Hero
  • Paige Ingoglia, Pediatric Honored Hero
  • Analise Scarpaci for kicking us off with the National Anthem

View photos here.

NYC Take Steps | May 12, 2016 | $384,000

The NYC Take Steps walk was attended by more than 600 walkers and has raised over $384,000! Patients, caregivers, family, friends and supporters first celebrated at a festival at the South Street Seaport before walking toward the Brooklyn Bridge. Walkers were then cheered on as they passed through the finish line at Foley Square.

Many thanks to:

  • Amy Lane, Adult Honored Hero
  • Molly Roberts, Pediatric Honored Hero and for kicking us off with the National Anthem
  • Dr. James Marion, GI Honored Hero
  • Ben Simmoneau, Master of Ceremony
View photos here.

Women of Distinction Luncheon | April 13, 2016 | $2.8M

On April 13th, the 23rd Annual Women of Distinction Luncheon at the Waldorf-Astoria was attended by more than 700 guests and raised $2.8 million dollars. The event included a fashion show of Andrew Gn's fall 2016 collection partnered with Bergdorf Goodman. 

Honorees included:

Nancy Brown, Woman of Distinction in Philanthropy

Judith Hannan, Woman of Distinction in Journalism

Peter H. Rubin, M.D., Humanitarian Award

Andrew Gn, Designer of the Year

Steven DeCrescenzo, Rising Star

Thank you to our co-chairs, Ellen Crown, Lara Engleberdt Metz, Elyse Newhouse, Carolyn Rowan, Michelle Swarzman, and Michele Sweetwood. Also thank you to our host, Lori Stokes, anchor at Eyewitness News This Morning ABC7.

View photos on Society Allure.