Crohn's & Colitis Foundation of America Announces IBD Qorus: A National Quality of Care Initiative



May 23, 2016

IBD Qorus is a key cohort of IBD Plexus, the largest, most innovative research and information exchange platform ever created to advance Crohn’s disease and ulcerative colitis research

New York, New York (May 23, 2016)-Today, the Crohn's & Colitis Foundation of America (CCFA) announced the launch of IBD Qorus, a ground-breaking collaboration between patients and their healthcare providers that will lead to enhanced health outcomes and improve the quality of care for inflammatory bowel diseases (IBD) patients. There are currently 20 gastroenterology practices enrolled in the program.

A number of recent studies have shown a significant degree of variation in how physicians around the country treat IBD. It's been shown that quality of care directly impacts the health outcomes for patients.

Corey Siegel, MD, Director of the Dartmouth-Hitchcock Inflammatory Bowel Disease Center, and Gil Melmed, MD, Director of Clinical Inflammatory Bowel Disease at Cedars-Sinai Medical Center, are Co-Chairs of IBD Qorus.

“We're focused on how care is delivered,” said Dr. Melmed. “Our aim is to establish a collaborative, Learning Health System for IBD that empowers healthcare providers to share ideas and report quality metrics to a common platform. This will enable clinicians to compare patient experiences and treatment outcomes over time and across a variety of care settings. Participating clinicians receive feedback on their patients' outcomes and learn from one another how to collectively improve the quality of IBD care they are delivering.”

To achieve these goals, IBD Qorus is developing an innovative model of patient/provider co-facilitation of healthcare, considered the cornerstone of the initiative. Designed to empower IBD patients to become more engaged and active in managing their care, the new model is being developed with critical input from several volunteer Patient Leaders, who have been providing valuable insights into the needs, concerns, and thoughts of patients living with IBD.

IBD Qorus is a key cohort of IBD Plexus, the research and information exchange platform being developed by CCFA to bring together and manage the diverse data and information IBD researchers need to advance toward better treatments and, ultimately, cures for Crohn's disease and ulcerative colitis. IBD Qorus provides key clinical information that can synergize with other patient-centered research data and information to enable additional studies and early discoveries, particularly related to clinical questions.

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Crohn's & Colitis Foundation

The Crohn's & Colitis Foundation of America's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. The Foundation ranks third among leading health non-profits in the percentage of expense devoted to research toward a cure, with more than 80 cents of every dollar the Foundation spends going to mission-critical programs. The Foundation consistently meets the standards of organizations that monitor charities, including the Better Business Bureau's Wise Giving Alliance (give.org) and the American Institute of Philanthropy (charitywatch.org).

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