Crohn's & Colitis Foundation to Convene First-Ever International YouTube Live with IBD Organizations
Leading non-profit observes World IBD Day on May 19 with partners from Australia, Brazil, Canada, and Europe with live video chat
NEW YORK, NY – More than 5 million people worldwide live with Crohn’s disease or ulcerative colitis, two debilitating inflammatory bowel diseases (IBD). Despite its prominence, public understanding of these diseases is limited, and much more needs to be done to increase awareness.
To help educate the public about these chronic autoimmune diseases, the Crohn’s & Colitis Foundation, the leading non-profit, voluntary health organization dedicated to finding cures for IBD, will convene the first-ever YouTube live video chat with representatives from six international IBD organizations on World IBD Day, May 19, 2017, from 3:00 – 4:00 p.m. EST. Participants include:
• Michael Osso, President & CEO of the Crohn’s & Colitis Foundation
• David Barker, chief executive of Crohn’s & Colitis UK
• Ciara Drohan, Crohn’s patient from Ireland and secretary of the European Federation of Crohn’s and Ulcerative Colitis Associations
• Matthew Herrera, an ulcerative colitis patient from Louisiana
• Francesca Manglaviti, chief executive officer of Crohn’s & Colitis Australia
• Angie Specic, vice president of marketing and communications for Crohn’s & Colitis Canada
• Dr. Flavio Steinwurz, founder and president emeritus, Associação Brasileira de Colite Ulcerativa e Doença de Crohn
IBD diagnosis, treatment, and care around the globe will be discussed during the hour-long chat, highlighting the differences that patients face worldwide. The chat can be watched live here: http://bit.ly/WorldIBDDayChat.
"Crohn's disease and ulcerative colitis impact people across the globe, with millions of children and adults affected. They are truly diseases without borders," said Michael Osso, President & CEO of the Foundation. "By bringing together leaders from various countries on World IBD Day, we ensure that we are doing all we can to increase disease awareness, sharing the power of the collective voice of our community, and ensure that we are using our resources to find cures for these debilitating diseases."
In addition to the YouTube Live video chat, the Foundation is leading a World IBD Day social media campaign to increase awareness of Crohn’s and colitis. Members of the IBD community can get involved by participating in a live Twitter chat on May 19 from 12-1 p.m. EST with NFL linebacker Michael Mauti using the hashtag #WorldIBDDayChat; changing their social media profile photo; donating a Facebook post or tweet to a Thunderclap; sharing their story on the Foundation’s website; and more.
The Foundation’s World IBD Day activities are sponsored by Salix Pharmaceuticals, Inc. For more information about World IBD Day, visit www.crohnscolitisfoundation.org/WorldIBDDay
Crohn's & Colitis Foundation
The Crohn's & Colitis Foundation of America's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. The Foundation ranks third among leading health non-profits in the percentage of expense devoted to research toward a cure, with more than 80 cents of every dollar the Foundation spends going to mission-critical programs. The Foundation consistently meets the standards of organizations that monitor charities, including the Better Business Bureau's Wise Giving Alliance (give.org) and the American Institute of Philanthropy (charitywatch.org).