Crohn's & Colitis Foundation's Privacy Policy

The purpose of the Crohn's & Colitis Foundation website is to provide information about the Foundation and Inflammatory Bowel Disease (IBD) to people living with Crohn's disease and ulcerative colitis, as well as to their families and friends; healthcare professionals; and the general public.

What information do we collect and how do we use it?

You may browse our website without identifying yourself or providing any personally identifiable information. When you interact with us through your computer, however, we do record certain non-identifying site-usage data, such as your number of visits to our website pages. 

If you elect to donate, register for an event, or sign up for any of our publications, you will be asked to provide personal information such as your name, address, city, state, zip, phone number, and email address. 

We may use this information to communicate with you by email or postal mail from time to time. The Crohn's & Colitis Foundation keeps all names, addresses, and all other personal information supplied by participants of our website strictly confidential. The Foundation discourages sharing of personal information in public online forums. Please keep in mind, however, that whenever you voluntarily disclose personal information on message boards, through email, or in chat areas, that information may be collected and used by others. 

Some parts of our website may also use 'cookies,' which are alphanumeric identifiers that are transferred to your computer through your web browser. You may configure your browser to accept all cookies, reject all cookies, or notify you when a cookie is sent. However if cookies are rejected, some pages on our website may not function properly.

Please note: Children under the age of 13 should receive parental consent prior to disclosing any personal information.

Do we share your information?

The Crohn's & Colitis Foundation keeps your personal information strictly confidential. However, we may occasionally make our constituent's names and addresses available to other reputable healthcare non-profit organizations. Your name is only available to these organizations for a limited time and your information will not be directly associated with the Foundation. Your information will not be readily accessible to other organizations unless you choose to respond to their initial mailing. We DO NOT share email addresses or other health-related data.

For disclosure of demographic information (e.g., rental or exchange of donor lists with other organizations), the Foundation as a minimum will use an "opt-out" approach. An "opt-out" is obtained when an individual declines or "opts-out" of disclosures to third parties or from receiving any communication from the organization. You may opt-out at any time to cease receiving communications from CCFA. If an individual does not opt-out, permission is deemed granted.

What security do we provide to protect your personal information?

The Crohn's & Colitis Foundation uses multiple electronic and administrative safeguards to protect your information from unauthorized access, such as firewall technologies and Secure Socket Layer (SSL) security, (described below). Access to your account information is protected via system passwords which are changed periodically. Despite use of these safeguards, we cannot guarantee and do not represent that your information will always be secure from unauthorized access.

Do we provide a secure environment for online transactions?

All credit card information collected through online transactions are processed with SSL security, an established protocol for transmitting information via the Internet which uses server authentication and data encryption to ensure that your data is safe, secure, and available only to authorized staff members of the Foundation. 

How can you contact us to review or correct your personal information?

You may view or edit your personal profile by logging in to our website at, where you can also view a history of your online transactions or subscribe to our e-newsletter. In addition, you may also email us at or call us at 1-800-932-2423 to review your personal information.

Disclaimer on information provided on the Crohn's & Colitis Foundation website

All articles and messages that appear in our website, including notes from physicians and other Crohn's & Colitis Foundation designated participants, are provided for general information purposes only. They do not represent individual medical advice, counsel concerning individual treatments or medical care, referrals to healthcare professionals, or any other recommendations. You should not rely on any information on these pages to replace consultations with your doctor and other qualified healthcare professionals regarding your individual health needs. Statements or opinions expressed by physicians and other independent authors reflect the views of each such individual and do not necessarily reflect the views or any official policy of the Foundation. 

The Crohn's & Colitis Foundation makes every effort to provide accurate and up-to-date information. However, the Foundation expressly disclaims all responsibility and liability arising from your use of or reliance on this website or for the information contained herein as a reference source, and for any advice or other guidance or information provided by any health care provider contributing to this site. 

Except where otherwise noted, all information on the Crohn's & Colitis Foundation website, including its design and organization, is copyrighted by the Crohn's & Colitis Foundation of America, Inc. This material is for personal use only. Permission to otherwise reprint or electronically reproduce any document in whole or in part is expressly prohibited, unless prior written consent is obtained from the Crohn's & Colitis Foundation.  

The Foundation's website also contains information copyrighted and owned by entities and individuals other than the Foundation. This information is for personal use only. Permission to otherwise reprint or electronically reproduce any document in whole or in part is expressly prohibited, unless prior written consent is obtained from the owner.  

The Foundation's website also contains third party information. Whenever possible, such information is marked with the name of the source and does not necessarily represent the opinion of the Crohn's & Colitis Foundation. We do not take any responsibility whatsoever for such third party information. 

The Foundation's website also contains links to other Internet sites. The Foundation does not necessarily endorse the views expressed in the Internet sites to which it provides links, nor is the organization responsible for the information they contain. The content of these linked sites are the sole responsibility of such sites and their contributing authors. The Crohn's & Colitis Foundation does not intend links to other sites to be referrals or endorsements of the linked entities, but rather provides such links for convenience only.

The Crohn's & Colitis Foundation maintains the right to modify this privacy policy at any time by electronic notice posted on our website. Your continued use of our website after the date that such notice is posted will be deemed to be your agreement to the changed terms.