|
|
|
|
|
|
|
SHARE THE LOVE
The Crohn’s & Colitis Foundation is the leading nonprofit organization focused on both research and patient support for inflammatory bowel disease (IBD), with the mission of curing Crohn’s disease and ulcerative colitis and improving the quality of life for the millions of Americans living with IBD. The Foundation’s work is dramatically accelerating the research process, while also providing extensive educational and support resources for patients and their families, medical professionals, and the public.
We want to ensure all your loved ones know they're not alone battling these diseases. Help them or someone you may not even know is battling by doing one or more of these actions:
1. Donate and/or share your loved ones Take Steps page
2. Support our Indiana Chapter with a donation
3. Share our Foundation resources
|
|
As the Crohn's & Colitis Foundation's largest and most impactful fundraising event, Take Steps is a walk experience that brings communities together — letting IBD patients and their families know that they're not alone. We can't wait to welcome you to our fun, family-friendly, and supportive atmosphere! Every teammate and every dollar raised helps us increase our collective impact on ground-breaking research, better treatments, and one day finding IBD cures. Start your team today!
|
|
|
|
|
Research Shows Positive Impact of Camp Oasis
It may be winter, but families are already exploring summer camp options for their kids. I’m excited to share that enrollment for Camp Oasis, our sleepaway camp for kids with IBD, is now open at 11 locations across the country. Camp Oasis includes a virtual CampOasis@home program as well. Excitingly, our new eight-year study reveals the positive impact that Camp Oasis has on campers’ well-being and feelings of self-worth, including:
Gaining confidence and independence: The study shows Camp Oasis helps kids manage their IBD and become more self-reliant.
Making lifelong friends: 98% of campers feel part of a community with others who understand them.
Feeling supported: Camp Oasis provides a safe space to talk openly about IBD and build self-acceptance.
Looking forward to the future: Campers leave feeling empowered and optimistic about living with IBD.
Read ourlatest blog article to find out what Dr. Steven Steiner (Indiana), pediatric gastroenterologist and medical director at Camp Oasis of Michigan, has to say about the life-changing impact of Camp Oasis on kids with IBD.
Your commitment to our mission enables us to create essential programs and resources that guide and support IBD patients and their families every step of the way on their disease journey.
Camp Oasis of Michigan
Session Dates: Sunday, July 28 - Friday, August 2, 2024
Host Site: YMCA Camp Copneconic in Fenton, MI
Campers: entering grades 2-11 in fall of 2024 - Apply Now!
LITs: entering grade 12 in fall 2024 - Apply Now!
Volunteers: minimum age of 19 years old - Apply Now!
Application Deadline: Monday, June 24, 2024
|
|
|
|
|
|
|
|
 MyIBD Learning: Sunday, February 18: Cincinnati
10:30 a.m. – 3:30 p.m. ET | Manor House – Mason, OH
In partnership with Cincinnati Children's.
Register here.
Fistulizing Crohn's Disease - New Resources Available: A fistula is an abnormal connection or tunneling between the intestines and a nearby organ or skin that affects many Crohn's disease patients. Learn more about the symptoms, diagnosis, and treatment options. This initiative is generously supported, in part, by Takeda Pharmaceuticals.
Caring For a Child with IBD: Our Youth & Parent Resources cover information about school, diet, and more.
Talking About Clinical Trials: Interested in joining a clinical trial, but you don't know where to start? Your doctor can help you understand clinical trials. Our discussion guide can help you start the conversation.
Aging With IBD: Watch this video for insights about managing IBD as you age.
Visit the MyIBD Learning page to search for upcoming community conferences, virtual education programs, and additional resources for IBD patients and caregivers.
|
|
|
|
|
|
|
|
|
|
Highlighted Professional Education Events and Resources
2023 IBD PRO Webinars Now Available On Demand
The IBD PRO Webinar Series 2023 provided essential training for healthcare professionals in the evolving landscape of IBD treatments. If you missed or would like to revisit any of the webinars, each webinar is accredited for 1.0 AMA, ANCC, ACPE credits and can be found on the IBD Clinical Hub.
2024-2025 Visiting IBD Fellowship
Apply now through March 1
This competitive clinical fellowship offers GI fellows the opportunity to accelerate their career development and gain practical experience by participating in the clinical operations of a leading IBD center. Click here to apply. Contact [email protected] with questions.
REACH-IBD: Rising Educators Academics and Clinicians Helping IBD
View the REACH-IBD Quarterly Newsletter here. You won’t want to miss the new IBD Careers section.
IBD Insider: Patient Updates from the Crohn's & Colitis Congress®,
is our live virtual symposium bringing patients and caregivers the 2024 Crohn's & Colitis Congress® highlights from IBD clinicians and patient moderators.
Register Today!
February 27, 2024 8pm-9pm ET
AGENDA
Welcome & Patient Highlights from Crohn's & Colitis Congress®
Maggie Tretton and Aaron Blocker
The Future of IBD Monitoring: Bridging the Gap for Optimal Management
"Monitoring Disease and Therapy: What needs to happen"
Kelly Cushing-Damm, MD, MSCI
The Future of IBD: Bugs, Pain and Precision Phenotyping
"Exploring the Potential of Virtual Reality in IBD"
Anava Wren, PhD
Q&A Session with Presenters and Patient Advocates
Please visit the IBD Clinical Hub for more educational resources, including
CME modules, webinars, professional education events, and career opportunities.
|
|
Advocacy is a critical part of our mission to improve the quality of life for patients and their families, and to find cures for Crohn’s disease and ulcerative colitis.
Read About Our 2024 Advocacy Priorities Here.
Indiana February Action:
- Precision medicine uses biomarker testing to gather information about a person’s own body to prevent, diagnose, or treat disease.
- The results of biomarker testing can help determine the medication(s) or treatment(s) that will work best for a specific patient.
- There are two commonly used biomarkers in inflammatory bowel disease (IBD) that allow physicians to, non-invasively, monitor the status of a patient’s disease. These include:
- C-reactive protein (CRP), a protein found in your blood that is used as a marker of inflammation
- Fecal calprotectin (FCP), a protein measured using a stool test that can indicate if there’s inflammation in the body
- State Level efforts
-
- Recent Updates, January – February 2024:
- There are currently 12 states have introduced biomarker testing legislation that we are supporting and tracking. We are monitoring Hawaii, Indiana, West Virginia and Washington for upcoming hearings.
- The Foundation is dedicated to finding cures for Crohn's disease and ulcerative colitis and improving the quality of life of children and adults affected by these diseases.
- Recent Updates, January – February 2024:
|
|
|
|
|
|
|
|
|
|
|
OUR MISSION
To cure Crohn’s disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.
|
|
|
|
|
|
|
|
|
|
|
|
