Forty-Eight National Health Organizations Urge Congress to Provide Funding for COVID-19 Education for Chronic Illness Communities

Also urge funding at the NIH to support the medical research community in time of need

NEW YORK, NY – Today, 48 national health organizations sent a letter to members of Congress urging them to fund critical education about COVID-19 and cancelled research activities as a result of the pandemic. 

Specifically, the organizations are encouraging that Congress provide funding to the Centers for Disease Control and Prevention to support education and awareness activities that provide disease-specific COVID-19 information to chronic illness communities. 

“While protecting public health, stay-at-home orders have essentially halted the ability of nonprofits to fundraise, and nonprofits are making painful, across-the-board budget cuts. Despite these cuts, patient-focused organizations are increasing their spending to provide critical information about the coronavirus in a manner that addresses the unique needs of their communities,” the groups wrote. “These education and awareness activities are helping patients access relevant information from a trusted source and are supporting patients in navigating the healthcare system during this time of medical office closures, potential exposure to COVID-19, drug shortages, and shifts in care settings. We urge Congress to establish a fund at the CDC to partner with patient-focused organizations to promote the information patients need to stay healthy and out of the hospital during this public health emergency.”

The groups are also asking that Congress provide funding to the National Institutes of Health to support the broad medical research community and help offset the millions of dollars of funding cuts being made by nonprofits in light of the COVID-19 pandemic and its negative impact on their fundraising. 

The full letter can be read here.

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The groups that signed the letter include the American Association of Neuromuscular & Electrodiagnostic Medicine, American Autoimmune Related Diseases Association, American Heart Association, American Kidney Fund, American Liver Foundation, American Neurogastroenterology and Motility Society, Arthritis Foundation, Association for Clinical and Translational Science, Celiac Disease Foundation, Chronic Disease Coalition, Clinical Research Forum, Coalition for Clinical and Translational Science, Community Liver Alliance, Crohn’s & Colitis Foundation, Cystic Fibrosis Foundation, Digestive Disease National Coalition, Dystonia Advocacy Network, Dystonia Medical Research Foundation, GBS|CIDP Foundation International Global Colon Cancer Association, Global Healthy Living Foundation, Global Liver Institute Immune Deficiency Foundation, International Foundation for Gastrointestinal Disorders, Interstitial Cystitis Association, Lupus and Allied Diseases Association, Inc., Lymphatic Education & Research Network, METAvivor, Muscular Dystrophy Association, National Alliance on Mental Illness, National Alopecia Areata Foundation, National Kidney Foundation, National Pancreas Foundation, NephCure Kidney International, Patient Services, Incorporated, Pennsylvania Society of Gastroenterology, Project Sleep, Pulmonary Hypertension Association, Restless Legs Syndrome Foundation, Scleroderma Foundation, Sleep Research Society, The American Society for Parenteral and Enteral Nutrition, The Greg and Cathy Griffith Family Foundation, The Leukemia & Lymphoma Society, The Marfan Foundation, The Oley Foundation, United Ostomy Associations of America, and US Hereditary Angioedema Association. 

Crohn's & Colitis Foundation

The Crohn's & Colitis Foundation is a non-profit, volunteer-fueled organization dedicated to finding the cures for Crohn's disease and ulcerative colitis, and to improving the quality of life of children and adults affected by these diseases. It was founded in 1967 by Irwin M. and Suzanne Rosenthal, William D. and Shelby Modell, and Henry D. Janowitz, M.D.