Alex's StoryClinical Trial Story
Unfortunately, that medication didn’t work for me and I moved on to participate in another clinical trial for an IV biologic medication that was being studied for long-term efficacy. I was even more nervous because I saw what happened during the first trial; however, I decided to take a risk anyway. Before enrolling in the second clinical trial, I made sure to ask my doctor as many questions as I had, and my parents did the same. We read brochures about the drug and looked up information the Foundation had provided on their website. I decided that joining that clinical trial would be a worthwhile risk, and it ended up being correct as that medication gave me nine sold years of symptom relief. Eventually I had to stop taking the medication for a non-IBD related reason and began taking an already FDA approved medication, but I think I would participate in another clinical trial if the opportunity was available down the road.
When it comes to clinical trials, my advice to other patients is to advocate for themselves. Do your research and learn what you can. Ask questions about the medication, trial information, the endpoints, the inclusion and exclusion criteria... all of it. Above all, never feel pressure to enroll; go with your gut (pun not intended).
|Hometown: Scotch Plains, New Jersey|