How Ann found support with people who just "get it"

Ann was diagnosed with both ulcerative colitis (UC) and celiac disease in 2014. Her flare-ups and symptoms have typically ranged from mild to moderate. She partners with doctors who can offer workable treatment options and make her feel comfortable as a patient. Through the ups and downs, Ann NEVER gives up! She often likes to say, “Please don’t give up! When you least expect it, the answers could be right around the corner!” 

After her UC diagnosis, on the Crohn’s & Colitis Foundation website, she saw there was a Springfield, MA support group which she quickly joined. She kept going back to meetings because she liked connecting with the other patients and feeling less alone. As Ann continued to attend meetings, the Group Leader unexpectedly had to stop facilitating. Ann volunteered to step into that role temporarily. Several months later, the original leader couldn’t return. That’s when Ann stepped up again to officially take over as Support Group Leader in January 2018. Why was she so passionate about doing this? Because she didn’t want anyone to lose out on having this support group in the area. 

In Ann’s words, “Support groups are an important resource for those of us who live with IBD. Patients and their families often feel a sense of relief being around those who just “get it.” As a Group Leader, Ann not only provides education and support but also learns from her participants. What really shines through is Ann’s passion for going above and beyond!

Ann says that her group feels like a family and welcomes new people with open arms. Her group has also grown in size over time which is exciting. Since COVID hit and her meetings became 100% virtual, she likes that people living throughout New England can join any support group at this time including the one she runs. 

This inspiring woman gets the most satisfaction knowing she’s empowering patients to be proactive and deal head on with their disease. She knows that being in a group setting and offering people the ability to learn everything they can about IBD, providing available tools and resources, and having a safe place to share feelings is appreciated by participants. Ann loves helping others and looks forward to seeing her group!

Volunteering has enriched Ann’s life in many ways including building friendships with many people she helps support. Being involved has made her feel less afraid of the disease. She realized early on that learning as much as she can and connecting with others in the IBD community are powerful ways to combat fear and isolation. 

The Crohn’s & Colitis Foundation website remains Ann’s “go-to” for helping her better understand the disease process, medical management options, finding online communities, national and chapter events, and much more. She also steers others there so they can benefit from the same comprehensive information.  

Ann believes in being an active partner in your care, advocating for yourself, listening to other patient experiences, and sharing your story. She’s truly an inspiration!

For more details or to join the group, email: [email protected].