May Updates from the Minnesota/Dakotas Chapter
Published: May 6, 2021
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May 2021:Golf Fore A Cure Topgolf Challenge | Take Steps Match | Paint the Town With Us | Virtual Camp Oasis | Mayo Clinic Minute: Can Diet Help IBD? | Italian American Club Golf Tournament | Planned Giving | Coping With IBD Pain and Fatigue | Preparing to Manage IBD On My Own | Understanding Pediatric Clinical Trials | Patient Resources | Friends of the Foundation
FORE- Join our Topgolf Challenge!
We are so excited to announce a completely new event for 2021: Golf Fore a Cure Topgolf Challenge this September 13 at Topgolf in Brooklyn Center. Join over 200 attendees of Twin Cities business leaders, community members, patients, and families for this great tournament and event! Rain or shine and completely climate controlled with Covid protocols in place for a great event. Golfers of all skill levels can enjoy this fun tournament with fun games, networking, raffles, and premier food and drink options! Learn more and register your team today here: https://p2p.onecause.com/topgolfchallenge. Register before June 1st and save $10 off of your registration fee with code EARLY BIRD Questions or interested in sponsoring? Contact Marissa at [email protected] or (651)-917-2424. Take Steps – Register Today & $50,000 Match If you’re still not registered for Take Steps, you’re not too late! Register today for the Hybrid Twin Cities Walk (virtual or drive-thru at Viking Lakes) or the Virtual Rochester Walk to join our incredible IBD community on Saturday, June 12. In addition to having an incredible impact on IBD patients and caregivers, your fundraising can also earn you fantastic incentives!
· Raise $100 or more to become a Pacesetter and earn a ‘100% Committed’ Pacesetter tshirt. Personal fundraising incentives get better the more you fundraise – a Take Steps hat at $350, your choice of duffel bag or picnic blanket at $1,000, beach blanket or hammock chair at $5,000 and jacket, vest or rolling cooler at $10,000. · The captains of ‘100% Committed’ teams who meet all incentive criteria by June 12th will receive a $50 DoorDash gift card. ‘100% Committed’ teams include at least three people, all of whom are fundraising, and who have collectively raised at least $500. · A team member and guest for each team raising $10,000 or more will be invited to participate in an exclusive, virtual conversation with our President & CEO Michael Osso, Chief Scientific Officer Caren Heller, and some of the country's top IBD physicians and scientists in early 2022. May 19th is World IBD Day! We stand with our IBD community worldwide by raising awareness about IBD, urging governments and healthcare professionals to take action and showing support for the millions of IBD patients worldwide. Join this global movement on May 19th by logging into your Fundraising Center and sending pre-drafted emails to your network asking for donations. You can also easily start a Facebook fundraiser that will link directly to your personal fundraising page. Thanks to the generosity of Chris and Heidi Stolte, all donations made to Take Steps in May will be matched, up to $500,000*. Continue fundraising, or get started, throughout May and help us secure an additional $500,000 for Take Steps. *Match revenue will not be allocated to your personal or team fundraising It’s Not Too Late to Paint the Town with Us!
Join our Young Professionals Group Thursday, May 13th at 7:30PM for a fun painting class via Zoom! Paint solo and meet other IBD patients & supporters in the zoom class or invite your crew over for a paint night at your place as we all paint together. All supplies will be mailed to you and a portion of all sales will be donated back to the Foundation! You can have your kit shipped with expedited shipping to arrive on time or you can purchase the class only option and pick up your own supplies. Get your kit today here: https://paintthetown.us/shop/young-prof-fundraiser/ Our Young Professionals are a dynamic group of Twin Cities young adults that focus on community connections, social networking, increasing awareness of Crohn’s disease & UC, group fundraising opportunities, and patient empowerment. Interested in joining our Young Professionals? Email Marissa at [email protected]. Registration is Now Open for Virtual Camp Oasis!
We are excited to invite your family to join us for 2021 Virtual Camp Oasis! New & re-imagined activities, special guests, and interactive virtual platforms will provide an unforgettable and unique experience, while time-honored Camp Oasis traditions, friendships, and connections will ensure a meaningful and empowering week for every camper, family, and volunteer. Virtual Camp Oasis is open to all kids and teens with IBD entering grades 2-12 in the Fall of 2021. Mayo Clinic Minute: Can Diet Help IBD?
The Minnesota/Dakotas Chapter of the Foundation is proud to partner with the Mayo Clinic as a Friend of the Foundation. The Mayo Clinic website is a reliable resources for patients looking to learn more about their disease. Check out this 1-minute video with Dr. Amanda Johnson, a Mayo Clinic gastroenterologist, who helps us better understand IBD and whether diet can help. Italian American Club & Foundation Golf Tournament
The Italian American Club has supported the Foundation’s Minnesota Camp Oasis since 2017. This summer they will be putting on a golf tournament to raise money for their Foundation, which funds programs such as Camp Oasis. Join them for their 24th annual tournament on Thursday, July 15 at the Manitou Ridge Golf Course in White Bear Lake. For more information on purchasing a foursome and/or sponsoring a hole, contact John Chiodo at 612-998-0401 and let John know that you learned of the tournament from the Crohn’s & Colitis Foundation. Planned Giving: Join the Founders Society
Coping with IBD Pain and Fatigue
Did you know that 50-70% of patients report GI or abdominal pain when their IBD symptoms began and/or when their disease is active? Having pain, both inside and outside the gut, as well as fatigue are commonly reported among IBD patients. Explore our new webpages to learn more about the causes of pain and fatigue as well as ways to treat and manage those symptoms. Preparing to Manage IBD On My Own
As a teen with IBD, you may already be well on your way in preparing to manage your disease on your own, or perhaps there are some skills you need to improve. You can find more information, tips, and helpful links about transitioning to adult care here. Also, check out this video, where Pete talks to Nicole about how she learns to become more independent with IBD. Remember to speak to your parent or guardian and healthcare team about gaining the skills you need for your journey with IBD as an adult. Understanding Pediatric IBD Clinical Trials
Interested in understanding the importance of pediatric clinical trials? Pediatric clinical trials for IBD allow researchers to determine what the best dosage and frequency of treatment is for children and teens. Researchers can test the effects of new treatments with the overall goal of providing safe and effective therapies tailored for children with IBD. Learn more here and check out our newest video to gain a better understanding of pediatric clinical trials! In-person support groups are currently not meeting, but some groups are offering virtual options. Please check out our support group page for additional information about your local support groups and reach out to the listed support group facilitator for more information. The Foundation has several resources that patients with IBD may find helpful in terms of support when the group is not meeting: IBD Help Center: Trained specialists available to provide information, guidance, and support. The IBD Help Center is available Mon-Fri, 9am-5pm EST. Contact (888) MY.GUT.PAIN or [email protected]. Power of Two: Connects those seeking support to volunteers who have gone through similar experiences with Crohn’s disease or ulcerative colitis. Connections are made within an app by phone or by chat. This program is open to patients & caregivers. For more information contact [email protected]. Crohn's & Colitis Online Community: Connect with others, join discussion forums, ask an expert a question, or share your experiences. Campus Connection: Provides a variety of tools and resources for college students with IBD. Friends of the Foundation are companies who significantly invest in the Crohn's & Colitis Foundation-Minnesota/Dakotas Chapter. Thank you to our partners! Your support helps our chapter invest in important IBD research and continue to support the IBD community in Minnesota, North Dakota, and South Dakota.
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