Meet Danielle, IBD Patient & Foundation Participant

Danielle was diagnosed with Crohn’s disease and acid reflux at age 24 in 2006. It took over a year — which included ER visits, seeing many doctors, and having GI imaging tests and procedures — to get real answers. Before her official diagnosis of Crohn’s, Danielle experienced worsening daily symptoms of going to the bathroom, abdominal pain, trouble eating, and feeling tired and weak. She lost 20+ pounds. It all seemed to come out of nowhere one day at work. When Danielle got diagnosed, she felt relief because she was ill for so long. But she now knew the problems and that treatment was available. 

Since 2006, Danielle has been on many different IBD medications for her Crohn’s, until her doctors found the right combination. She’s been in remission without side effects for 8 years! 

During Danielle’s roller coaster IBD journey, she’s still worked full-time in a Customer Service role. Grateful and proud that she can maintain a good job, this Crohn’s fighter takes great pride in the accomplishment. Several years ago, she even went on a dream vacation to Peru with friends and had the best time without any bowel issues! 

Danielle got involved last year with the New England Chapter. Her therapist suggested she find an IBD Group for extra support and to make connections. Danielle emailed a Boston Area Group Leader for meeting information. She joined that support group and is still an active participant. Danielle has attended our Chapter fundraisers and education events.

Some things that have helped Danielle cope mentally during Crohn’s flare-ups are hanging out with friends who rally around her. In her darkest moments of despair, snuggling with her former roommate’s dog had been everything. He could always tell when she wasn’t feeling well and provided comfort. Other things that help Danielle are taking relaxing baths and a warm heating pad on her belly. She enjoys sharing her IBD story with other patients and giving them hope that it’s possible to have a pretty normal life despite their disease.

If patients are hesitant to get involved with the Foundation, Danielle says, “Getting support doesn’t have to be depressing in IBD support groups or at events. In our community, people can relate when others are in remission or flare-ups. Being involved is actually a positive thing and emotionally healing. You can share your IBD story confidentially with other patients which helps them and ourselves.” 

On a personal note, Danielle loves spending time with her nieces and nephews and enjoys being with her friends. They like going to restaurants and pubs, checking out seasonal events, and celebrating their birthdays together.

Find a New England Chapter support group at: https://www.crohnscolitisfoundation.org/chapters/ne.