Additional Pediatric Resources

Pediatric patients need their own specialized care with professionals and organizations that recognize their unique needs, including education, healthcare, nutrition, and more. These organizations can help provide financial support and resources.

 

If you are looking for a specific resource not on this list, please contact our IBD Help Center.

 

The Crohn’s & Colitis Foundation does not endorse the services offered by the organizations listed below. This is offered for informational purposes only.

 


 

American Academy of Child and Adolescent Psychiatry

The mission of AACAP is to promote the healthy development of children, adolescents, and families through advocacy, education, and research, and to meet the professional needs of child and adolescent psychiatrists throughout their careers.

 

American Academy of Pediatrics

The American Academy of Pediatrics is an organization of 67,000 pediatricians committed to the optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.​

 

American Council on Education

ACE is committed to affirming and strengthening public trust in postsecondary education; championing postsecondary education’s role in social and economic mobility; and enriching the capacity of institutions and leaders to innovate and adapt.

 

GI Kids

GIKids provides children and families with resources and easy-to-understand information on the diagnosis and management of pediatric digestive disorders.

 

Girlshealth.gov

Girlshealth.gov offers girls reliable, useful information on health and well-being. They cover hundreds of topics, from getting your period to stopping bullies, and from getting fit to preventing sexually transmitted infections.

 

Got Transition

Got Transition® is the national resource center on health care transition (HCT), or the transition pediatric to adult health care. Its aim is to improve HCT through the use of evidence-driven strategies for clinicians and other health care professionals; public health programs; payers and plans; youth and young adults; and parents and caregivers. Got Transition is a program of The National Alliance to Advance Adolescent Health.

 

Hillel International

Hillel is the largest and most inclusive Jewish campus organization in the world, serving more than 160,000 Jewish students each year at 850 colleges and universities around the world.

 

ImproveCareNow

ImproveCareNow has created a collaborative community where clinicians, researchers, patients and parents are empowered to learn and continuously improve to bring about more reliable, proactive IBD care for healthier children and youth.

 

Kids Wish Network

Since 1997, Kids Wish Network has impacted several thousand children, and this is just the beginning. The organization invites others to join in multiplying their efforts to make wishes come true. Commitment goes beyond granting a wish; every wish granted infuses hope, creates happy memories, and improves the quality of life for a child experiencing life-altering situations. Kids Wish Network is dedicated to changing lives and welcomes everyone ready to help in this mission.

 

Make-A-Wish

Make-A-Wish creates transformative experiences for children with critical illnesses, impacting not just the wish kids, but also their families, volunteers, donors, sponsors, medical professionals, and communities. For wish kids, the fulfillment of their wish can inspire the courage to adhere to their medical treatments. For parents, it can spark newfound optimism. For others, it reveals the profound potential for contribution through volunteer work and philanthropy. Wishes are more than just kind gestures—they are powerful catalysts for hope and change.

 

North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN)

The mission of NASPGHAN is to be a world leader in research, education, clinical practice and advocacy for Pediatric Gastroenterology, Hepatology and Nutrition in health and disease.

 

Project Sunshine

Project Sunshine brings volunteer-led programming to pediatric patients and their families in a variety of medical settings. They partner with medical facilities across the United States and beyond to provide opportunities for play in the medical environment- restoring a crucial sense of normalcy for patients and their families.

 

Starlight

Since 1982, Starlight has been delivering happiness to seriously ill children and their families. While it was launched as a wish-granting organization, Starlight has expand its offerings with even more ways of delivering happiness for kids and their families - with entertainment, activities, and other services provided right in the hospital settings.

 

The Great Bowel Movement

Their mission is foster conversations surrounding the complexities and realities of IBD, fueled by an empowered, active community of patients and caregivers like you.