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20 results

Surviving summer with IBD

July 1, 2020

I have always loved the summer months. I looked forward to summer camp, sitting by my pool, eating watermelon in the sunshine, and walking along the beach on Long Beach Island. But my Crohn’s disease forced me into a love-hate relationship with the summer. The sun makes me tired and out...

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Working through the trauma of chronic illness

June 5, 2020

Although post-traumatic stress is a harsh reality thousands of people live with, I always thought of it as something that people experienced after facing a severe event. Little did I know how deeply it could impact people living their ordinary lives, just like myself.  ...

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Ending the stigma surrounding mental illness

May 11, 2020

When I was 15 years old, I was diagnosed with severe ulcerative colitis. Twelve days later, I underwent surgery to remove most of my large intestine. I woke up from surgery having lost most of my colon (and gained an ileostomy), a month of my sophomore year, and a lot of self-confidence...

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Finding comfort, love, and IBD support from a pet

May 6, 2020

Thinking back to my childhood, the one thing that always brought me joy were animals. My parents allowed my siblings and I to have pets, and we treated them like real members of our family. When I first got diagnosed with ulcerative colitis, I remember feeling very overwhelmed. It alway...

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Becoming a nurse: Turning personal experience into a career

May 4, 2020

Someone once told me that nurses are the life force that make a hospital thrive, and function, on a daily basis. There is no truer statement.  My IBD journey started when I was 15. I was diagnosed with ulcerative colitis and spent a month in the hospital trying to recover enough t...

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Living with IBD as a South Asian woman

April 24, 2020

IBD can affect anyone, regardless of their gender identity, age, or racial/ethnic background. And yet, when I was growing up, I didn’t feel as though that was true. In fact, in my experience, the people in the IBD community around me hardly ever looked like me. I remember meeting anothe...

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Seeing the World through a New Lens: Traveling with IBD

April 19, 2019

Written by Kacy Holloway, National Council of College Leaders member Traveling has always been something I’ve loved doing, and there is so much of the world that I still want to see. Traveling can take anyone out of their comfort zone – a new location with unfamiliar foods and places, ...

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Misdiagnosis and Communicating with your Healthcare Providers

April 19, 2019

Written by Ty Redler, National Council of College Leaders alumnus Misdiagnosis: a period throughout a patient’s medical journey where the patient can be confused, scared, unheard, misunderstood, and lost. Before I was diagnosed, I was misdiagnosed with seemingly everything that is a co...

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Dining in College with IBD

April 17, 2019

Written by Colette Manley, National Council of College Leaders alumnus Hey IBD’ers- My name is Colette. I am a recent graduate from Iowa State University and now attending graduate school. It hasn’t been easy, managing my Crohn’s while in school, but it is definitely possible. One of t...

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Moving into your Dorm

November 20, 2018

Written by Amy Bugwadia, National Council of College Leaders member Moving to college can be worrisome for anyone, not to mention the unique challenges that an IBD patient may face. Something that will inevitably arise is how and when to tell your roommates about IBD. Remember tha...

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