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19 results

Being South Asian American & Living with IBD

February 2, 2021

Tina Aswani Omprakash

I was 22 years old when I was first diagnosed with inflammatory bowel disease (IBD). I felt very isolated as a young South Asian American woman, unable to relate to those around me who were healthy and able-bodied. Even though this disease runs in my family, there was very little knowle...

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Throwing light on a potential new treatment for ulcerative proctitis

December 22, 2020

Amber Tresca

On November 17-18, 2020, the Crohn’s & Colitis Foundation hosted its third annual IBD Innovate: Product Development for Crohn’s & Colitis™ conference. This meeting brings together researchers, start-up companies, industry companies, accelerator organizations and more w...

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Seeking better biomarkers and indicators of IBD

March 30, 2020

When Christopher Columbus first sighted land in October 1492, he thought he had reached Japan. That’s how bad his map was.  In medicine, we rely increasingly on biomarkers (indicators of disease) to ”map” our health, disease risks, disease conditions, and responses to treatment. S...

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Close-up on patient/activist Casey Jean Silvernale: The importance of patient-driven research priorities

March 10, 2020

Casey Jean Silvernale was diagnosed at age 11 with Crohn’s disease. Now, more than a dozen years later, she’s working as a clinical research coordinator in the Center for Neurointestinal Health at Massachusetts General Hospital and studying for her MCATS (the admissions test for medical...

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IBD Innovate: Accelerating research with data exchange platforms

March 10, 2020

Although the main purpose of IBD Innovate 2019 was to showcase new IBD products, the Crohn's & Colitis Foundation also wanted to make sure researchers and developers were up-to-date about current developments in data exchange research platforms. Having data exchange platforms openly...

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IBD Innovate: Patients as medical entrepreneurs

March 10, 2020

The following are two patient stories that were recently presented at the Crohn's & Colitis Foundation's second annual IBD Innovate Conference. They demonstrate how patients are taking active roles in creating new products to help IBD patients. Crohn’s patient Slawa Madelska and Dr...

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IBD Innovate: Accelerating IBD products through innovation

March 10, 2020

At the end of 2019, the Crohn’s & Colitis Foundation convened the second annual IBD Innovate, our unique showcase and networking event for innovators working in the inflammatory bowel disease (IBD) space.    By bringing together developers engaged in the creation of new a...

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Mental Health—An invisible driver of IBD cost of care

February 26, 2020

Living with a chronic illness, like Crohn’s disease or ulcerative colitis, can affect not only your physical health but also your mental health and emotional well-being. In fact, the rate of anxiety and depression among IBD patients is two to three times higher than that of the general ...

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The Weekend Effect: Risks for Pediatric IBD Patients

January 21, 2020

Have you ever noticed that your quality of treatment in a hospital changes based on the time of day and/or the day of the week that you are there? It’s true; the care you receive during regular hours on a weekday can vary drastically from the weekend. This is often referred to as the we...

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