Who is Ally Bain? How Ally’s Experience with IBD Sparked a Movement   Diagnosed with Crohn’s disease at 11 years old, Ally Bain struggled for years to manage the symptoms of her inflammatory bowel disease (IBD). By the time she entered her teens, she had missed schoo...

Secretary of Health Robert F. Kennedy Jr.’s recent Senate testimony has reignited a crucial debate: How can the U.S. better address the rising tide of chronic, non-infectious diseases? With nearly six in ten Americans now living with at least one chronic condition—including heart diseas...

“IBD Has No Borders” was a fitting theme for World IBD Day (May 17) and a recent worldwide meeting focused on how we as a global community can ensure that people living with inflammatory bowel disease (IBD) can access the care they need.   I had the privilege to join this meeting...

The Foundation’s annual Day on the Hill event took place virtually on Tuesday, September 19. More than 150 volunteer advocates engaged with their legislators, asking them to support crucial legislation aimed at increasing access to care for IBD patients.   This year our advocacy ...

  Going back to school can be an exciting time for students, marked by the anticipation of reuniting with classmates and teachers after the summer and starting a new grade. However, as the new school year approaches, it’s crucial to address the unique challenges faced by K-12 st...

  On a warm Wednesday morning in late May, healthcare advocates from across the country joined the Foundation at United Healthcare’s headquarters in Minnetonka, Minnesota to protest a forthcoming policy that would have expanded prio...

Public policy advocacy has been central to the Foundation’s mission since its founding over five decades ago. Our cofounder, Suzanne Rosenthal, was passionate about creating legislative change for patients like her living with Crohn’s disease or ulcerative colitis. She was known for wal...

More than one billion people around the world live with some form of a disability. For over three decades, July has been observed as Disability Pride Month, coinciding with the enactment of the Americans with Disabilities Act (ADA). Tomorrow is the 32nd anniversary of the ADA, and I wa...

Despite 2020 being a difficult year due to the COVID-19 pandemic, the Foundation saw some great advocacy successes. These could not have been achieved without the efforts of our advocacy volunteers from across the country as well as the leadership of our congressional champions, includi...

March 23, 2010 was a memorable day for me. I was working for a U.S. Senator who played a key role in shepherding the Affordable Care Act (ACA) through Congress. I had spent the months prior organizing healthcare town halls and visiting hospitals discussing the issues plaguing our health...