22 results
“I Found Myself:” A Song of Self-Love for the IBD Community
In the Falkenstein family, no one struggles alone. In fact, their support for one another led to the writing and recording of an anthem for self-love, “I Found Myself.” This song of perseverance, self-confidence, and hope is written by David Falkenstein, an ulcerative colitis patient and father on a...
Read more... IBD Insider program connects and empowers IBD community
When those with Crohn’s disease and ulcerative colitis collaborate with physicians for the purpose of patient education, something magical happens. Our perspective and unique personal experiences with IBD resonate on a different level with fellow patients and caregivers because it’s our reality.
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Read more... Surviving summer with IBD
I have always loved the summer months. I looked forward to summer camp, sitting by my pool, eating watermelon in the sunshine, and walking along the beach on Long Beach Island. But my Crohn’s disease forced me into a love-hate relationship with the summer. The sun makes me tired and outdoor venues o...
Read more... What IBD patients should know about the 2019 novel coronavirus (COVID-19)
We understand that there’s a lot of information in the news about the coronavirus (COVID-19) and you may be concerned. The Foundation is here to help you make sense of the information and take the precautions recommended by the Centers for Disease Controls and Prevention (CDC).Jump to:What is COVID-...
Read more... 2019 Wrapped: IBD Edition
It's hard to believe that 2020 is right around the corner—where did the year go?
As we begin to plan for the new year, we wanted to look back on the past year to highlight the big news and successes for the IBD community. After going back through the year, all I can say is 2019 was an exciting ye...
Read more... Seeing the World through a New Lens: Traveling with IBD
Written by Kacy Holloway, National Council of College Leaders member
Traveling has always been something I’ve loved doing, and there is so much of the world that I still want to see. Traveling can take anyone out of their comfort zone – a new location with unfamiliar foods and places, maybe even ...
Read more... Misdiagnosis and Communicating with your Healthcare Providers
Written by Ty Redler, National Council of College Leaders alumnus
Misdiagnosis: a period throughout a patient’s medical journey where the patient can be confused, scared, unheard, misunderstood, and lost. Before I was diagnosed, I was misdiagnosed with seemingly everything that is a common misdia...
Read more... High School Sports with IBD
Written by Curtis, age 18
There is one word that soulfully describes high school sports, fast. The adrenaline pumps through your veins, your heartbeat starts to rise, you are ready to compete.
On the field I feel at home, I feel normal, and having this feeling while battling ...
Read more... How to deal with accidents
Written by Sneha, age 18 -Crohn's and Colitis Young Adults Network
Accidents can be embarrassing and incredibly difficult to talk about—especially with other teenagers. It is important to find a way to deal with these accidents so they may be easier to handle.
For years, it was even diff...
Read more... Preparing for your visit
Written by Sneha, age 18 --Crohn's and Colitis Young Adults Network
Ask yourself the following questions. Have you been taking your medications without your parents reminding you? Do you know when your next GI appointment is? When will you have to refill your prescription?
If...
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