Growing Up with Crohn’s & Colitis

Pediatric IBD is a chronic condition that causes inflammation in the digestive tract. The two main forms are Crohn's disease and ulcerative colitis. While IBD can occur at any age, it is increasingly diagnosed in children and teens. Symptoms may include abdominal pain, diarrhea, fatigue, weight loss, poor growth, and urgency to use the bathroom. Although there is currently no cure, treatments can help control inflammation, manage symptoms, and support healthy growth and development. 

Symptoms vary from child to child but may commonly include:

• Persistent diarrhea
• Abdominal pain or cramping
• Blood in the stool
• Weight loss or poor weight gain
• Fatigue
• Delayed growth or puberty
• Loss of appetite
• Urgent or frequent bowel movements

Some children may also experience symptoms outside the digestive tract, such as joint pain, skin rashes, or eye inflammation.

Yes. With proper treatment and ongoing medical care, most children with Crohn’s disease and ulcerative colitis can attend school, participate in sports and activities, travel, and enjoy time with friends and family. Treatment plans are designed to control inflammation, prevent complications, support growth, and help children maintain a high quality of life. Regular follow-up care is important to monitor health and adjust treatment as needed.

Pediatric IBD is an inflammatory condition that currently needs to be managed throughout their life, but with early diagnosis, appropriate treatment, and ongoing support, most children can grow and lead active, healthy lives. Working closely with a pediatric gastroenterologist and healthcare team can help families successfully manage the disease and improve long-term outcomes. Connecting with a community for support can go a long way. Visit our support resources.