| | 26 DAYS TIL WE TAKE STEPS FOR ALL THOSE AFFECTED BY IBD!
Everyone’s IBD journey is worth taking steps for!
Whether you are a patient, doctor, caregiver, or there to support a loved one—the newly
reimagined Take Steps experience is designed to empower and celebrate all those impacted
by IBD. Help us raise critical funds to support the IBD community and IBD cures. Join us as we
come together for an inspirational and impactful day—full of fun for all ages...and all IBD journeys. We can’t wait for you to enjoy our all-new walk day activities and experiences!
EVENT OPENS: 10AM
OPENING CEREMONY: 11AM
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SAVE THE DATE!!!!
2023 LEGACY GALA
October 27, 2023
Indiana Roof Ballroom
This year is going to be like no other, so you won't want to miss it! We're at a new venue with new experiences & a lot to look forward to. To secure your table now or see our sponsorship options, click the link below. |
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When you are first diagnosed, you may hear a lot of unfamiliar words related to IBD and your care. Our helpful glossary contains some of the most common IBD terms so you can feel empowered and educated when talking with your healthcare team.
Clinical Trials Day is May 20.
Clinical Trials Day is a day to recognize the crucial role that clinical trials play in advancing medical research and treatment. For those suffering from Crohn's disease and ulcerative colitis, clinical trials offer the possibility of new advancements and treatments. Join the Clinical Trials Community and discover the latest breakthroughs in IBD research. Learn about ongoing clinical trials and how you can participate in them. By taking part, you'll not only gain access to cutting-edge treatments, but you'll also contribute to the development of better therapies for those who are currently struggling with these conditions. Don't miss this opportunity to make a difference in your life and in the lives of others.
IBD & Me Activity Center
First getting diagnosed with IBD can be confusing and may feel like you’re the only one. But millions of people all over the world have IBD! Meet Ben, Kat, and their friends in their comic as they find out what it’s really like living with IBD and play along with their interactive games!
VOWST Approved by FDA For Prevention of Recurrent C. diff Infection
Recently, the U.S. Food & Drug Administration announced the approval of VOWST for the prevention of recurrence of C. Difficile infection (CDI), in adults following antibacterial treatment for recurrent CDI. VOWST is the first orally administered microbiota-based therapeutic for the prevention of recurrent CDI.
C. difficile, a gut-infecting bacterium, commonly known as C.diff, is responsible for sickening half a million people and causing up to 30,000 deaths in the United States annually, often as a result of antibiotic treatment. People with IBD are at a higher risk of developing CDI, even if they haven't taken antibiotics.
The Foundation is actively updating its materials and will be posting on our social media accounts to inform patients of this approval. VOWST information for patients is available here.
Please note that approval of a medication does not mean it is available yet on the market. We will notify you once VOWST is available to patients. Each patient’s disease is different and what works for one person may not for another. Because of the individual nature of IBD it is important that treatment options be available for patients to help manage their disease and improve their quality of life. We are hopeful that with new options available more patients will find success in managing their disease and achieving remission.
Additional information will be provided once all the details are gathered. If you are contacted by any constituents regarding this new approval, please direct them to the IBD Help Center.
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DON'T FORGET TO REGISTER FOR CAMP!
Our Camp Oasis team invite you to join us for this year's camp!
Camp Oasis of Michigan (Indiana Regional Partner)Session Dates: Sunday, July 30th - Friday, August 4th
Host Site: YMCA Camp Copneconic in Fenton, MI
Campers: entering grades 2-11 in fall of 2023 - Apply Now!
LITs: entering grade 12 in fall 2023 - Apply Now!
Volunteers: minimum age of 19 years old - Apply Now!
*Our camp specifically needs male camp counselors! *Applications due by June 1st, this includes virtual participation to receive activity box.
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May 19th is World IBD Day! This World IBD Day, we invite the IBD community to tell us how the Foundation can Make a Gut Friendly World.
Take our brief survey and enter for a chance to win a $100 gift card to Williams Sonoma so your kitchen is
stocked up and ready to prepare Gut Friendly Recipes!
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| Contact Us Tatijana Narwold, Executive Director
[email protected]
317-259-8071 ext. 2 Erin is out on maternity leave, please send any communications to Tatijana. |
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| | | OUR MISSION To cure Crohn’s disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. |
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