| | | THE RESULTS ARE IN!!!!Last week, our Foundation hosted a virtual volunteer leadership conference for
our staff and chapter volunteer leaders. As we do annually, we concluded our
impactful sessions with an awards ceremony to honor our two national volunteer
award recipients and name our top chapters in a variety of areas. I am delighted
to share that our Indiana Chapter took home
2ND IN THE NATION for our Legacy Gala!
Thank you to all our dedicated committee members, generous donors
and sponsors, staff, event volunteers, and of course our FEARLESS LEADERS,
MILES MATTINGLY & JUSTIN NICHOLS!
Now, it's our chance to stay on top of the leaderboard in 2024. Let us begin by welcoming our
2024 Legacy Gala Honorees---
*If you want to join our esteemed Legacy Gala committee, reach out to [email protected].
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ARE YOU READY TO TAKE STEPS?
As the Crohn's & Colitis Foundation's largest and most impactful fundraising event, Take Steps
is a walk experience that brings communities together — letting IBD patients and their families
know that they're not alone. We can't wait to welcome you to our fun, family-friendly, and
supportive atmosphere! Every teammate and every dollar raised helps us increase our collective
impact on ground-breaking research, better treatments, and one day finding IBD cures.
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Check Out Our 2023 Highlights
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Research Shows Positive Impact of Camp Oasis
It may be winter, but families are already exploring summer camp options for their kids. I’m excited to share that enrollment for Camp Oasis, our sleepaway camp for kids with IBD, is now open at 11 locations across the country. Camp Oasis includes a virtual CampOasis@home program as well. Excitingly, our new eight-year study reveals the positive impact that Camp Oasis has on campers’
well-being and feelings of self-worth, including:
Gaining confidence and independence: The study shows Camp Oasis helps kids manage their IBD and become more self-reliant.
Making lifelong friends: 98% of campers feel part of a community with others who understand them.
Feeling supported: Camp Oasis provides a safe space to talk openly about IBD and build self-acceptance.
Looking forward to the future: Campers leave feeling empowered and optimistic about living with IBD.
Read ourlatest blog article to find out what Dr. Steven Steiner (Indiana), pediatric gastroenterologist and medical director at Camp Oasis of Michigan, has to say about the life-changing impact of Camp Oasis on kids with IBD.
Your commitment to our mission enables us to create essential programs and resources that guide and support IBD patients and their families every step of the way on their disease journey.
Camp Oasis of MichiganSession Dates: Sunday, July 28 - Friday, August 2, 2024
Host Site: YMCA Camp Copneconic in Fenton, MI
Campers: entering grades 2-11 in fall of 2024 - Apply Now!
LITs: entering grade 12 in fall 2024 - Apply Now!
Volunteers: minimum age of 19 years old - Apply Now!
Application Deadline: Monday, June 24, 2024 |
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|  MyIBD Learning Virtual Event 3.12: Helping Your Child Gain Confidence
Join us for our next MyIBD Learning program where we will discuss ways you can help your child gain confidence and independence. Hear from other patients and IBD medical experts! Sign up here!
New video: Targeted Synthetic Small Molecule Medications
Targeted synthetic small molecules are oral medications that help reduce inflammation by targeting parts of the immune system. Check out our new video that explains how these new medications work to reduce IBD inflammation.
Effects of IBD on Women: New Resources
It is important to understand how the events in a woman's life can affect the course of their disease, and how their disease, in turn, can affect these milestones. Check out our new Effects of IBD on Women resources.
Video: Gaining Health Confidence in IBD
IBD clinical research explores questions about how various aspects of Crohn's disease or ulcerative colitis affect patients and their quality of life. Watch this interview with National Youth Leadership Council member Nathan Moy and Dr. Chung Tse on her research on health confidence and IBD.
Visit the MyIBD Learning page to search for upcoming community conferences, virtual education programs, and additional resources for IBD patients and caregivers.
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Highlighted Professional Education Events and Resources
2023 IBD PRO Webinars Now Available On Demand
The IBD PRO Webinar Series 2023 provided essential training for healthcare professionals in the evolving landscape of IBD treatments. If you missed or would like to revisit any of the webinars, each webinar is accredited for 1.0 AMA, ANCC, ACPE credits and can be found on the IBD Clinical Hub.
2024-2025 Visiting IBD Fellowship
Apply now through March 8.
This competitive clinical fellowship offers GI fellows the opportunity to accelerate their career development and gain practical experience by participating in the clinical operations of a leading IBD center. Click here to apply. Contact [email protected] with questions.
APP IBD Preceptorship Program – Apply by March 15
Applications are now open for the 2024 Advanced Practice Provider (APP) IBD Preceptorship Program targeting NPs, CNSs, and PAs new to IBD care. Participants will learn from experienced professionals and gain confidence in providing quality IBD care based on current guidelines and research.
Tips on Managing IBD in Elderly Patients
This resource provides an overview on how to manage IBD in elderly populations (age 50 and older).
REACH-IBD: Rising Educators Academics and Clinicians Helping IBD
View the REACH-IBD Quarterly Newsletter here. You won’t want to miss the new IBD Careers section.
Please visit the IBD Clinical Hub for more educational resources, including CME modules, webinars, professional education events, and career opportunities.
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Advocacy Action Week 2024
It’s Advocacy Action Week! Throughout the week, Foundation volunteers will be contacting their legislators asking them to support federal policies related to funding for IBD research and access to care.
Advocacy is an important part of achieving our mission. It directly leads to more funding for IBD research, better access to treatment and more affordable health care.
We need your help, too. In less than a minute and with just one click you can send a message to your members of Congress asking them to support IBD research and access to care.
Click here to complete the action. More messages lead to IBD patients having a louder voice in Congress which in turn helps build support for our issues. Thank you for your support!
Please forward this message to your networks – the more messages sent, the greater our chances will be for seeing the important policy changes we need!
Read About Our 2024 Advocacy Priorities Here.
Indiana Action:
Biomarkers
- Precision medicine uses biomarker testing to gather information about a person’s own body to prevent, diagnose, or treat disease.
- The results of biomarker testing can help determine the medication(s) or treatment(s) that will work best for a specific patient.
- There are two commonly used biomarkers in inflammatory bowel disease (IBD) that allow physicians to, non-invasively, monitor the status of a patient’s disease. These include:
- C-reactive protein (CRP), a protein found in your blood that is used as a marker of inflammation
- Fecal calprotectin (FCP), a protein measured using a stool test that can indicate if there’s inflammation in the body
State Level efforts -
- Recent Updates, February – March 2024:
- We are monitoring 12 state legislatures for Biomarker testing coverage legislation that was introduced for the 2024 session.
- States are CO, FL, HI, IA, IN, MA, ME, OH, PA, VT, WA and WV. If you know of patients in these states who have had a is issue accessing testing, please reach out to the advocacy team.
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| | | OUR MISSION To cure Crohn’s disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. |
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