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How to support someone with IBD
Caregivers play a huge role in the lives of IBD patients. So, what and who exactly is a caregiver? According to the Family Caregiver Alliance, a caregiver can be any relative, partner, friend, neighbor, or other individual who provides care to someone with a chronic condition, like Crohn's dise...
Read more... Infusion therapy for IBD treatment
If you have Crohn’s disease or ulcerative colitis, infusion therapy may become part of your treatment regimen to manage your disease. There are many ways you can receive your infusion therapy – read on to learn more about how infusion therapy may be used to treat IBD, your options for where to get a...
Read more... Giving thanks
For many in the United States, November marks the start of the holiday season—a perfect time of year to reflect on what we are thankful for. As IBD patients and caregivers, it can often seem like the odds are stacked against us. So, what do we do to ...
Read more... The PoopUp: Coming soon to a city near you!
Nothing steals the show quite like a giant, blue, poop emoji-shaped tent. That’s why the Crohn’s & Colitis Foundation created the PoopUp, a mobile museum-like experience to help educate and spread awareness about Crohn’s disease and ulcerative colitis.
The PoopUp not only includes t...
Read more... Learning what it means to be a caregiver
If you asked me when I was a 20-year-old college student where I’d see myself years down the road, I never would have thought I’d be a caregiver for someone with a chronic disease. When I was a junior in college, I met a guy. He knocked on the door to my apartment on move in day and asked for toilet...
Read more... Accepting my ostomy
I was 15 years old, just wrapping up gymnastics season and my freshman year of high school, when I got news that flooded my future with uncertainty—after years of battling health issues, I would now need an ostomy bag. I felt scared, sad, and alone.
I...
Read more... “I Found Myself:” A Song of Self-Love for the IBD Community
In the Falkenstein family, no one struggles alone. In fact, their support for one another led to the writing and recording of an anthem for self-love, “I Found Myself.” This song of perseverance, self-confidence, and hope is written by David Falkenstein, an ulcerative colitis patient and father on a...
Read more... How to recognize and avoid misinformation about IBD
When you were diagnosed with inflammatory bowel disease (IBD), you probably went on the internet to research your disease. Within seconds, you had a vast web of information about symptoms, treatments, and other resources at your fingertips.
According to the Pew Internet Project, over 50% of...
Read more... Evolution of care for ostomy patients
Approximately 1 in 500 Americans live with an ostomy, and many of those are patients who have Crohn’s disease or ulcerative colitis. In patients with inflammatory bowel disease (IBD), an ostomy may be needed temporarily or permanently for a variety of reasons, including sudden, severe ulcerative col...
Read more... Is a specialty pharmacy right for me?
If you have Crohn’s disease or ulcerative colitis, then you know how hard it can be to pay for your medication. A Foundation study found that people with inflammatory bowel disease (IBD), especially Crohn’s, pay three times the total health care costs and double the out-of-pocket expenses than peopl...
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