13 results
Ally’s Law: Restroom Access & 20 Years of Advocacy
Who is Ally Bain? How Ally’s Experience with IBD Sparked a Movement Diagnosed with Crohn’s disease at 11 years old, Ally Bain struggled for years to manage the symptoms of her inflammatory bowel disease (IBD). By the time she entered her teens, she had missed school, been in an...
Read more... Prevention First: The Missing Pillar in America’s Fight Against Chronic Disease
Secretary of Health Robert F. Kennedy Jr.’s recent Senate testimony has reignited a crucial debate: How can the U.S. better address the rising tide of chronic, non-infectious diseases? With nearly six in ten Americans now living with at least one chronic condition—including heart disease, diabetes, ...
Read more... Navigating the Maze: Barriers to IBD Care and the Path Forward
When Dr. Ariel Jordan started medical school in 2017, she didn’t imagine she’d become an advocate for people living with inflammatory bowel disease (IBD).
But one day when she went to the pharmacy to pick up her usual medication for her ulcerative colitis, she was shocked to find ...
Read more... IBD Has No Borders
“IBD Has No Borders” was a fitting theme for World IBD Day (May 17) and a recent worldwide meeting focused on how we as a global community can ensure that people living with inflammatory bowel disease (IBD) can access the care they need.
I had the privilege to join this meeting organize...
Read more... Foundation Hosts Successful Virtual Day on the Hill
The Foundation’s annual Day on the Hill event took place virtually on Tuesday, September 19. More than 150 volunteer advocates engaged with their legislators, asking them to support crucial legislation aimed at increasing access to care for IBD patients.
This year our advocacy prioritie...
Read more... Setting Up School Accommodations for Your Child with IBD: What Parents Need to Know
Going back to school can be an exciting time for students, marked by the anticipation of reuniting with classmates and teachers after the summer and starting a new grade. However, as the new school year approaches, it’s crucial to address the unique challenges faced by K-12 students wi...
Read more... We Can’t Stomach This: Foundation Holds Rally at UnitedHealthcare Headquarters Protesting Forthcoming Prior Authorization Policy
On a warm Wednesday morning in late May, healthcare advocates from across the country joined the Foundation at United Healthcare’s headquarters in Minnetonka, Minnesota to protest a forthcoming policy that would have expanded prior authorization for most physician-prescribed endoscopy ...
Read more... Support IBD-Friendly Legislation
Public policy advocacy has been central to the Foundation’s mission since its founding over five decades ago. Our cofounder, Suzanne Rosenthal, was passionate about creating legislative change for patients like her living with Crohn’s disease or ulcerative colitis. She was known for walking the hall...
Read more... Commemorating Disability Pride Month
More than one billion people around the world live with some form of a disability. For over three decades, July has been observed as Disability Pride Month, coinciding with the enactment of the Americans with Disabilities Act (ADA).
Tomorrow is the 32nd anniversary of the ADA, and I wanted to sha...
Read more... Advocating for Change – 2022 Day on the Hill
The Crohn’s & Colitis Foundation advocates on behalf of IBD patients, caregivers, and healthcare providers. Consistent with our mission, we ask Congress, the Administration, and state legislatures to support medical research to find cures for IBD, and to pass legislation to improve patient acces...
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