IBD Qorus: Publications

Collective efforts from IBD Qorus are uncovering best practices, improved care delivery, and facilitating the rapid spread of new ideas. Use the list tool below to find peer-reviewed manuscripts, abstracts, and more from the IBD Qorus network.

 

Qorus Learning Health System

Manuscripts

Investigating the use of the social vulnerability index to predict healthcare utilization among patients with inflammatory bowel disease

Gastroenterology, April 2023

 

Effects of Active Patient Participation in an inflammatory bowel disease quality improvement program on healthcare utilization outcomes

Inflammatory Bowel Diseases, February 2023

 

Real world implementation of Treat-to-Target in patients with IBD in a learning health system: An IBD Qorus Collaborative Study

Inflammatory Bowel Diseases, February 2023

 

Eliciting patients’ healthcare goals and concerns: Do questions influence responses?

Chronic Illness, January 2022

 

Point-of-care dashboards promote coproduction of healthcare services for patients with inflammatory bowel disease

International Journal for Quality in Health Care, November 2021

 

Identifying and Predicting the Goals and Concerns Prioritized by Individuals with Inflammatory Bowel Disease

Journal of Crohn's and Colitis, August 2021

 

Reliability of Patient Self-reported Utilization in an Inflammatory Bowel Diseases Learning Health System

Crohn's & Colitis 360, June 2021

 

A qualitative inquiry into patients’ perspectives on individualized priorities for treatment outcomes in inflammatory bowel diseases

SpringerLink, April 2020

 

Fostering Collaboration Through Creation of an IBD Learning Health System

American Journal of Gastroenterology, March 2017

 

Quality Indicators for Inflammatory Bowel Disease: Development of Process and Outcome Measures

Inflammatory Bowel Diseases, March 2013

Abstracts and posters

Longitudinal Study of The Impact of Health Confidence on Inflammatory Bowel Disease Outcomes and Healthcare Utilization

Crohn’s and Colitis Congress, January 2022

Tse CS, Melmed G, Weng CH, Shah S, Weaver A, Oliver B, Elwyn G, Siegel C, van Deen W.

 

Vulnerability Index to Predict Healthcare Utilization Among Patients with Inflammatory Bowel Disease

Crohn’s and Colitis Congress, January 2023

Dang N, Cradeur M, Zeven K, Khunte M, Kumar S, Marino S, Kwon M, Kamp K, Oberai R, van Deen WK, Tse CS, Melmed GY, Siegel C, Weaver SA, Shah S.

 

Acceptability and Preferences for Multimodal Inflammatory Bowel Disease (IBD) Self-Help Resources: Patients’ and Providers’ Perspectives

American Journal of Gastroenterology, October 2023

Tse, Chung Sang MD1,*; Lewis, James MD, MSCE1; Shah, Samir A. MD, FACG2; Ostrov, Arthur H. MD3; Burwell, Stephanie NP4; Gaidos, Jill MD, FACG5; Forster, Erin MD, MPH6; Fiske, Hannah MD7; Hunt, Melissa G. PhD1; Kuehnel, Robert PhD8; Soto, Catherine MPA9; Singh, Siddharth MD10; Weaver, Alandra MPH9; Siegel, Corey A. MD, MS11; Melmed, Gil MD, MS12; van Deen, Welmoed MD, PhD13.

 

Low Health Confidence Is Associated With Significantly More Hospital-Based, Acute Healthcare Utilization In Patients With Inflammatory Bowel Disease: A National Sample Of Over 18,000 Adults

Digestive Disease Week, May 2021

Tse CS, Siegel CA, Weaver SA, Oliver BJ, van Deen WK, Melmed GY

 

Same-page care is associated with improved shared decision-making for patients with inflammatory bowel disease

Digestive Disease Week, May 2020 

Van Citters AD, Holthoff MM, Kennedy AM, Hoggard AL, Oliver BJ, Weaver A, Siegel CA, Melmed GY, Nelson EC

 

Goals and Concerns Reported by Patients with Inflammatory Bowel Diseases During Clinic Visits

Digestive Disease Week, May 2020 

Van Deen WK, Tse CS, Shah SA, Crate DJ, Oberai R, Hwang C, Ostrov A, Lum D, Nelson E, Oliver BJ, Van Citters A, Holthoff M, Kennedy AM, Hou JK, Singh S, Weaver A, Melmed G, Siegel CA

 

Top Goals and Concerns Reported by Individuals with Inflammatory Bower Disease at Outpatient Gastroenterology Clinic Visits

Crohn’s & Colitis Congress, January 2020

Chung Sang Tse et al, Gastroenterology, Volume 158, Issue 3, Supplement, 2020, Pages S92-S93, ISSN 0016-5085

 

Shared decision-making independently associated with patient confidence in self-care for adults with inflammatory bowel disease

International Shared Decision-Making Conference, Quebec City, Canada, July 2019

Van Citters A, Holthoff M, Siegel C, Melmed G, Kennedy A, Barr P, Oliver B, Morgan E, Weaver A, Nelson G, Elwyn G

 

The Assessment of Individual Patient Preferences for Outcomes in Inflammatory Bowel Disease Care 

Digestive Disease Week, May 2019

van Deen WK, Shah SA, Kwon MH, Weaver SA, Melmed GY, Siegel CA. San Diego, CA, May 18, 2019

 

Eliciting Individual Patient Preferences to Understand the Relative Importance of Different Outcomes of Care

Crohn's & Colitis Congress, February 2019

van Deen WK, Shah SA, Kwon MH, Weaver SA, Melmed GY, Siegel CA. Las Vegas, NV; February 7-9, 2019

 

Validating Patient Reported Utilization in the IBD Qorus Learning Health System

Crohn's & Colitis Congress, February 2019

van Deen WK, Kwon MH, Blissett G, Shah SA, Hwang C, Weaver SA, Siegel CA, Melmed GY. Las Vegas, NV; February 7-9, 2019

 

Feasibility of a Multicenter, Collaborative, Longitudinal, Quality Improvement Learning Health System for Adult IBD Care

Advances in IBD, December 2016

Inflammatory Bowel Diseases: Feb 2017 – Volume 23 – S19– S19 – Meeting abstract P-043

Value Compass

Manuscripts

Engaging Patients in Inflammatory Bowel Disease Care – What Determines Active Participation?

Inflammatory Bowel Diseases, February 2023

 

Development of Balanced Whole System Value Measures for Inflammatory Bowel Disease Care in the IBD Qorus Collaborative Using a Modified Delphi Process

Inflammatory Bowel Diseases, May 2021

Abstracts and posters

Engaging Patients in Inflammatory Bowel Disease Care – what Determines Active Participation?

Crohn’s and Colitis Congress, January 2023

Dang N, Kwon M, Kumar S, Cradeur M, Zeven K, Khunte M, Marino D, Tse CS, van Deen WK, Lee A, Kamp K, Oberai R, Melmed GY, Siegel CA, Weaver SA, Shah S.

 

Measuring Value: Identifying a Balanced Measure Set for Quality Improvement Focused on Improving Care for Inflammatory Bowel Disease

Digestive Disease Week, May 2020 

Kennedy AM, van Deen WK, Oliver BJ, Nelson E, Van Citters A, Holthoff M, Weaver A, Siegel CA, Melmed G

 

 

Treat to Target

Manuscripts

Treat-to-Target: The Era of Targeted Immunosuppressive Agents in IBD Management

Rhode Island Medical Journal, November 2022

 

Concordance and Discordance Between Patient-reported Remission, Patient-reported Outcomes, and Physician Global Assessment

Inflammatory Bowel Diseases, September 2022

 

Abstracts and posters

Real-World Patterns of Objective Inflammation Assessment in a large, multicenter cohort: Potential Gaps and Barriers to Treat To Target

Crohn’s and Colitis Congress, January 2024

Thien-Bao Nguyen

 

Chronological Age Influences Treatment Decision in Inflammatory Bowel Disease

Crohn’s and Colitis Congress, January 2024

Lawrence Kogan

 

Treat-To-Target: Differences Between Private and Academic Gastroenterology Practices of the IBD QORUS Registry

American Journal of Gastroenterology, October 2023

Krane, Andrew MD1,*; Singh, Siddharth MD2; Melmed, Gil MD, MS3; Siegel, Corey A. MD, MS4; Ostrov, Arthur H. MD5; Oberai, Ridhima BS6; Weaver, Alandra MPH6; Harvey, Sarah MPS6; Shah, Samir A. MD7.

 

Real-world Implementation of Treat-to-target in Patients

Crohn’s and Colitis Congress, January 2023

Singh S, Oliver B, Hou J, van Deen WK, Weaver S, Siegel CA, Melmed GY.

 

Concordance Between Remission Defined by Patients vs Patient-Reported Outcome Measures in Inflammatory Bowel Disease

Digestive Disease Week, May 2022

Kamp K, Tse CS, Hawes S, Oberai R, Weaver A, Singh S, Melmed G, Siegel C, van Deen WK.

Care Pathways

Manuscripts

Development and Pilot Testing of the Inflammatory Bowel Disease Nutrition Care Pathway

Clinical Gastroenterology and Hepatology, June 2020

 

Improving Anemia in Inflammatory Bowel Disease: Impact of the Anemia Care Pathway

Digestive Diseases and Sciences, March 2019

 

Assessment of Gaps in Care and the Development of a Care Pathway for Anemia in Patients with Inflammatory Bowel Diseases

Inflammatory Bowel Diseases, January 2017

 

Knowledge, Attitudes, and Beliefs Regarding the Role of Nutrition in IBD Among Patients and Providers

Inflammatory Bowel Diseases, October 2016

Abstracts and posters

A Self-reported Malnutrition Tool Predicts Hospitalization and Surgery in Inflammatory Bowel Disease

Digestive Disease Week, June 2018

Nene P, van Deen WK, Elmasry S, Wang Y, Weaver A, Siegel C, Melmed GY, Hwang C.

 

Development of a Clinical Care Pathway to Identify and Treat Malnutrition in Patients with Inflammatory Bowel Disease

Advances in IBD, December 2016

Inflammatory Bowel Diseases: Feb 2017 – Volume 23 – S23– S23 – Meeting abstract P-056

 

Feasibility of Screening for Anemia using the Crohn’s and Colitis Foundation of America’s Anemia Care Pathway in IBD Qorus

Advances in IBD, December 2016

Inflammatory Bowel Diseases: Feb 2017 – Volume 23 – S46 – S47 – Meeting abstract P-132

Urgent Care

Manuscripts

Health Economic Impact of a Multicenter Quality-of-Care Initiative for Reducing Unplanned Healthcare Utilization Among Patients With Inflammatory Bowel Disease

American Journal of Gastroenterology, December 2021

 

Abstracts and posters

Quality of Care Program Reduces Unplanned Health Care Utilization in Patients With Inflammatory Bowel Disease

American Journal of Gastroenterology, December 2021

Melmed, Gil Y. MD, MS1; Oliver, Brant PhD, MS, MPH, FNP2; Hou, Jason K. MD3; Lum, Donald MD4; Singh, Siddharth MD5; Crate, Damara RN6; Almario, Christopher MD, MSHPM1,7; Bray, Harry MD4; Bresee, Catherine MS8; Gerich, Mark MD9; Gerner, Donna RN10; Heagy, Erica FNP-C4; Holthoff, Megan MSHS2; Hudesman, David MD11; McCutcheon Adams, Kelly LICSW12; Mattar, Mark C. MD13; Metwally, Mark MD10; Nelson, Eugene DSc, MPH2; Ostrov, Arthur MD10; Rubin, David T. MD14; Scott, Frank MD, MSCE9; Samir, Shah MD15; van Deen, Welmoed PhD, MD7; Younes, Ziad MD16; Oberai, Ridhima BS17; Weaver, Alandra MPH17; Siegel, Corey A. MD, MS6;  on behalf of IBD Qorus.

 

Evaluating the cost savings of a multicenter quality improvement program for improving the delivery of IBD urgent care

Poster of Distinction at Digestive Disease Week, May 2021

Almario CV, Kogan L, van Deen WK, Hou J, Lum D, Singh S, Aguilar H, Betteridge J, Flynn A, Gerich M, Kaufman L, Mattar M, Mize C, Ostrov A, Scott F, Shah SA, Younes Z, Weaver SA, Heller C, Siegel CA, Melmed GY. Evaluating the cost savings of a multicenter quality improvement program for improving the delivery of IBD urgent care. e-Poster of Distinction at DDW; 2021

 

Urgent Medical Access for Patients with Inflammatory Bowel Disease at a Private Community Gastroenterology Practice

Digestive Disease Week, May 2020

Tse CS, Kwon M, Danielewicz M, van Deen WK, Shah SA

 

Improvement in Inflammatory Bowel Disease Care Does not Differ by Practice Type

Digestive Disease Week, May 2020

 

The IBD Urgent Care Toolkit: Which Process Changes Are Associated with Successful Improvement?

Digestive Disease Week, May 2020

 

Urgent Medical Access for Patients with Inflammatory Bowel Disease at a Private Community Gastroenterology Practice

Crohn’s & Colitis Congress, January 2020

Tse CS, Kwon MH, Danielewicz M, van Deen WK, Shah S. Gastroenterology, Volume 158, Issue 3, Supplement, 2020, Page S93, ISSN 0016-5085

 

Quality of Care Initiative Improves Outcomes for Patients with Inflammatory Bowel Disease

Crohn’s & Colitis Congress, January 2020

Gil Melmed et al. Gastroenterology, Volume 158, Issue 3, Supplement, 2020, Page S88, ISSN 0016-5085

 

Identification of patients with Inflammatory Bowel Disease at High Risk of Urgent Care Utilization through IBD Qorus, a Learning Healthcare System

Crohn’s & Colitis, February 2019

 

The Development of an IBD Specialty Clinic within a Gastroenterology Practice

Crohn’s & Colitis Congress, January 2018

MANAGEMENT OF COMPLICATED INFLAMMATORY BOWEL DISEASES| VOLUME 154, ISSUE 1, SUPPLEMENT, S107-S108, JANUARY 01, 2018

 

Sustainable Improvements in Urgent Care Access and Outcomes for Patients with Inflammatory Bowel Disease through Implementation of an Urgent Access Toolkit

Crohn’s & Colitis Congress, January 2018

 

CCFA Quality of Care Breakthrough Series Collaborative: Improving the Delivery of Urgent Care for Patients with IBD

Advances in IBD, December 2016

Inflammatory Bowel Diseases: Feb 2017 – Volume 23 – S45 – S46 – Meeting abstract P-129

Health Services Research

Manuscripts

Improving Health Confidence in Adults with IBD May Reduce HealthCare Utilization Independent of Disease Duration

Gastroenterology, May 2023

 

Bidirectional Correlations Between Health Confidence and Inflammatory Bowel Disease Activity: A Nationwide Longitudinal Cohort Study

Inflammatory Bowel Diseases, January 2023

 

Health Confidence is Associated with Disease Outcomes and Health Care Utilization in Inflammatory Bowel Disease: A Nationwide Cross-Sectional Study

Inflammatory Bowel Diseases, October 2022

 

Abstracts and posters

Exploring the Relationship Between Patient Symptoms and Provider Goals for Mucosal Healing in IBD: Insights From the IBD Qorus Survey Data

Crohn’s and Colitis Congress, January 2024

Angela Troia