IBD Qorus: Publications

Collective efforts from IBD Qorus are uncovering best practices, improved care delivery, and facilitating the rapid spread of new ideas. Use the list tool below to find peer-reviewed manuscripts, abstracts, and more from the IBD Qorus network.

Explore IBD Qorus

Qorus Learning Health System

Manuscripts

Preferences, Acceptability, and Utilization of Multimodal Self-Help Interventions in Adults With Inflammatory Bowel Diseases: A Pragmatic Multicenter Study With Patients and Clinicians

Inflammatory Bowel Diseases, July 2025

A Hybrid Markov–SPC Approach to Assess Cost Differences in Urgent Care Utilization Using Patient-Reported Data in Inflammatory Bowel Disease

The Permanente Journal, September 2024

Predictive Factors of Inactive Patient Participation in an Inflammatory Bowel Disease Learning Health System: A Longitudinal Cohort Study

Inflammatory Bowel Diseases, May 2024

Effects of Active Patient Participation in an inflammatory bowel disease quality improvement program on healthcare utilization outcomes

Inflammatory Bowel Diseases, February 2023

Eliciting patients’ healthcare goals and concerns: Do questions influence responses?

Chronic Illness, January 2022

Point-of-care dashboards promote coproduction of healthcare services for patients with inflammatory bowel disease

International Journal for Quality in Health Care, November 2021

Identifying and Predicting the Goals and Concerns Prioritized by Individuals with Inflammatory Bowel Disease

Journal of Crohn's and Colitis, August 2021

Reliability of Patient Self-reported Utilization in an Inflammatory Bowel Diseases Learning Health System

Crohn's & Colitis 360, June 2021

A qualitative inquiry into patients’ perspectives on individualized priorities for treatment outcomes in inflammatory bowel diseases

SpringerLink, April 2020

Fostering Collaboration Through Creation of an IBD Learning Health System

American Journal of Gastroenterology, March 2017

Quality Indicators for Inflammatory Bowel Disease: Development of Process and Outcome Measures

Inflammatory Bowel Diseases, March 2013

Abstracts and posters

Patients’ Preference and Acceptability of Inflammatory Bowel Diseases Self-Help Interventions: CORE Study (Confidence Optimization through Resources for Education, Engagement, and Empowerment)

AIBD, 2024

Sheng, Emily

Acceptability and Preferences for Multimodal Inflammatory Bowel Disease (IBD) Self-Help Resources: Patients’ and Providers’ Perspectives

American Journal of Gastroenterology, October 2023

Tse, Chung Sang MD1,*; Lewis, James MD, MSCE1; Shah, Samir A. MD, FACG2; Ostrov, Arthur H. MD3; Burwell, Stephanie NP4; Gaidos, Jill MD, FACG5; Forster, Erin MD, MPH6; Fiske, Hannah MD7; Hunt, Melissa G. PhD1; Kuehnel, Robert PhD8; Soto, Catherine MPA9; Singh, Siddharth MD10; Weaver, Alandra MPH9; Siegel, Corey A. MD, MS11; Melmed, Gil MD, MS12; van Deen, Welmoed MD, PhD13.

Vulnerability Index to Predict Healthcare Utilization Among Patients with Inflammatory Bowel Disease

Crohn’s and Colitis Congress, January 2023

Dang N, Cradeur M, Zeven K, Khunte M, Kumar S, Marino S, Kwon M, Kamp K, Oberai R, van Deen WK, Tse CS, Melmed GY, Siegel C, Weaver SA, Shah S.

Longitudinal Study of The Impact of Health Confidence on Inflammatory Bowel Disease Outcomes and Healthcare Utilization

Crohn’s and Colitis Congress, January 2022

Tse CS, Melmed G, Weng CH, Shah S, Weaver A, Oliver B, Elwyn G, Siegel C, van Deen W.

Low Health Confidence Is Associated With Significantly More Hospital-Based, Acute Healthcare Utilization In Patients With Inflammatory Bowel Disease: A National Sample Of Over 18,000 Adults

Digestive Disease Week, May 2021

Tse CS, Siegel CA, Weaver SA, Oliver BJ, van Deen WK, Melmed GY

Same-page care is associated with improved shared decision-making for patients with inflammatory bowel disease

Digestive Disease Week, May 2020

Van Citters AD, Holthoff MM, Kennedy AM, Hoggard AL, Oliver BJ, Weaver A, Siegel CA, Melmed GY, Nelson EC

Goals and Concerns Reported by Patients with Inflammatory Bowel Diseases During Clinic Visits

Digestive Disease Week, May 2020

Van Deen WK, Tse CS, Shah SA, Crate DJ, Oberai R, Hwang C, Ostrov A, Lum D, Nelson E, Oliver BJ, Van Citters A, Holthoff M, Kennedy AM, Hou JK, Singh S, Weaver A, Melmed G, Siegel CA

Top Goals and Concerns Reported by Individuals with Inflammatory Bower Disease at Outpatient Gastroenterology Clinic Visits

Crohn’s & Colitis Congress, January 2020

Chung Sang Tse et al, Gastroenterology, Volume 158, Issue 3, Supplement, 2020, Pages S92-S93, ISSN 0016-5085

Shared decision-making independently associated with patient confidence in self-care for adults with inflammatory bowel disease

International Shared Decision-Making Conference, Quebec City, Canada, July 2019

Van Citters A, Holthoff M, Siegel C, Melmed G, Kennedy A, Barr P, Oliver B, Morgan E, Weaver A, Nelson G, Elwyn G

The Assessment of Individual Patient Preferences for Outcomes in Inflammatory Bowel Disease Care

Digestive Disease Week, May 2019

van Deen WK, Shah SA, Kwon MH, Weaver SA, Melmed GY, Siegel CA. San Diego, CA, May 18, 2019

Eliciting Individual Patient Preferences to Understand the Relative Importance of Different Outcomes of Care

Crohn's & Colitis Congress, February 2019

van Deen WK, Shah SA, Kwon MH, Weaver SA, Melmed GY, Siegel CA. Las Vegas, NV; February 7-9, 2019

Validating Patient Reported Utilization in the IBD Qorus Learning Health System

Crohn's & Colitis Congress, February 2019

van Deen WK, Kwon MH, Blissett G, Shah SA, Hwang C, Weaver SA, Siegel CA, Melmed GY. Las Vegas, NV; February 7-9, 2019

Feasibility of a Multicenter, Collaborative, Longitudinal, Quality Improvement Learning Health System for Adult IBD Care

Advances in IBD, December 2016

Inflammatory Bowel Diseases: Feb 2017 – Volume 23 – S19– S19 – Meeting abstract P-043

Value Compass

Manuscripts

Development of Balanced Whole System Value Measures for Inflammatory Bowel Disease Care in the IBD Qorus Collaborative Using a Modified Delphi Process

Inflammatory Bowel Diseases, May 2021

Abstracts and posters

Engaging Patients in Inflammatory Bowel Disease Care – what Determines Active Participation?

Crohn’s and Colitis Congress, January 2023

Dang N, Kwon M, Kumar S, Cradeur M, Zeven K, Khunte M, Marino D, Tse CS, van Deen WK, Lee A, Kamp K, Oberai R, Melmed GY, Siegel CA, Weaver SA, Shah S.

Measuring Value: Identifying a Balanced Measure Set for Quality Improvement Focused on Improving Care for Inflammatory Bowel Disease

Digestive Disease Week, May 2020

Kennedy AM, van Deen WK, Oliver BJ, Nelson E, Van Citters A, Holthoff M, Weaver A, Siegel CA, Melmed G

Treat to Target

Manuscripts

Understanding the Link Between Patient Symptoms and Provider Goals for Mucosal Healing in IBD: Insights from the IBD Qorus Survey

Digestive Diseases and Sciences, November 2025

Treat-to-target of endoscopic remission in patients with inflammatory bowel disease in symptomatic remission on advanced therapies (QUOTIENT): rationale, design and protocol for an open-label, multicentre, pragmatic, randomised controlled trial

BMJ Open Gastroenterology, March 2025

Treat-to-Target: The Era of Targeted Immunosuppressive Agents in IBD Management

Rhode Island Medical Journal, November 2022

Abstracts and posters

Determining Adherence to Treat-to-Target Goals in Inflammatory Bowel Disease: Insights from IBD Qorus Survey Data

Crohn’s and Colitis Congress, February 2025

Michelle Dong

Treat-to-Target: A Comparison of Treatment and Patient Outcomes Between Academic and Private Practices in IBD Qorus

ACG, October 2024

Jacqueline Chu

Treat to Target Recommendations and Adherence in Inflammatory Bowel Disease: Provider Perspectives

ACG, October 2024

Frank Scott

Treat to Target Recommendations and Adherence in Inflammatory Bowel Disease: Patient Experiences and Perspectives

ACG, October 2024

Frank Scott

Real-World Patterns of Objective Inflammation Assessment in a large, multicenter cohort: Potential Gaps and Barriers to Treat To Target

Crohn’s and Colitis Congress, January 2024

Thien-Bao Nguyen

Chronological Age Influences Treatment Decision in Inflammatory Bowel Disease

Crohn’s and Colitis Congress, January 2024

Lawrence Kogan

Treat-To-Target: Differences Between Private and Academic Gastroenterology Practices of the IBD QORUS Registry

American Journal of Gastroenterology, October 2023

Krane, Andrew MD1,*; Singh, Siddharth MD2; Melmed, Gil MD, MS3; Siegel, Corey A. MD, MS4; Ostrov, Arthur H. MD5; Oberai, Ridhima BS6; Weaver, Alandra MPH6; Harvey, Sarah MPS6; Shah, Samir A. MD7.

Real-world Implementation of Treat-to-target in Patients

Crohn’s and Colitis Congress, January 2023

Singh S, Oliver B, Hou J, van Deen WK, Weaver S, Siegel CA, Melmed GY.

Concordance Between Remission Defined by Patients vs Patient-Reported Outcome Measures in Inflammatory Bowel Disease

Digestive Disease Week, May 2022

Kamp K, Tse CS, Hawes S, Oberai R, Weaver A, Singh S, Melmed G, Siegel C, van Deen WK.

Care Pathways